Why We Are here…

Golden Stem was born from a deeply personal journey — one filled with love, uncertainty, and a determination to help others.

When our loved one was diagnosed with ALS, we were thrown into unfamiliar territory. We spent countless hours searching for answers, resources and support — often feeling overwhelmed and alone. Along the way, we realized how powerful it was to hear from others who had been through it — how much strength and clarity came from shared stories, small insights and simple acts of kindness.

Golden Stem is a nonprofit platform created to unite those living with ALS, their families, and caregivers. It’s a space where people can find trusted resources, ask questions, share their journeys, and connect with others who truly understand. Through this community, we aim to offer more than just information — we aim to offer light, hope, and support in one of life’s most challenging times.

Together, by sharing what we know and lifting each other up, we can turn our collective experience into something powerful. No one should have to face ALS alone — and with Golden Stem, they don’t have to.