Traveling with ALS: Tips for Comfortable and Stress-Free Trips
Traveling can be a wonderful experience, but for those living with ALS, it requires careful planning to ensure safety, comfort, and accessibility. From flights to hotels and everything in between, a few thoughtful strategies can make all the difference. Here’s what to keep in mind when planning your trip.
Choosing Accessible Flights
Direct flights: Whenever possible, book direct flights to minimize transfers and long walks in airports.
Early boarding: Request early boarding to allow extra time to get settled without the rush of other passengers.
Wheelchair assistance: If mobility is a challenge, arrange wheelchair or mobility assistance ahead of time. Airlines can provide escorts to the gate, assistance during boarding, and help retrieving checked wheelchairs at your destination.
Seat selection: Choose seats with extra space if possible. Aisle seats near the front of the plane are often the most accessible.
Baggage: Most airlines waive fees for luggage considered medical equipment. Confirm with your airline in advance to ease some of the travel stress.
Selecting the Right Hotels
Accessibility features: Choose rooms with roll-in showers, grab bars, wide doorways, and minimal steps. If a lift is needed to transfer the patient to and from the bed, request a bed with clear space underneath. Always confirm these features with the hotel, as accessibility options can sometimes be confusing.
Location: Choose accommodations close to restaurants, medical facilities, and attractions to reduce travel time.
Hotel services: Ask about shuttle services, accessible transportation, and in-room amenities such as adjustable beds or medical equipment accommodations.
Request in advance: Always confirm accessibility features with the hotel before booking.
Preparing for Transportation
Rental vehicles: If renting a car, request vehicles with hand controls or other adaptive equipment if needed.
Ride services: Check in advance whether local taxi or ride-share services can accommodate wheelchairs or mobility devices.
Packing and Equipment
Medical supplies: Bring extra medications, batteries and backup equipment. Keep essential items in your carry-on.
Assistive devices: If using mobility aids, consider lightweight or foldable options for travel.
Travel checklists: Use a checklist to ensure nothing critical is left behind—from medication to chargers to personal care items.
Planning for Comfort and Safety
Travel insurance: Consider insurance that covers medical emergencies, trip cancellations or mobility equipment loss.
Rest breaks: Schedule downtime during your itinerary to prevent fatigue.
Local medical resources: Identify nearby hospitals or clinics at your destination in case of emergencies.
Resources and Support
ALS organizations: Many ALS organizations provide travel resources, equipment rental programs and tips for accessible destinations.
Peer advice: Connecting with other travelers living with ALS can offer practical insights and firsthand experiences.
Traveling with ALS doesn’t have to be daunting. With thoughtful planning, the right accommodations, and support along the way, you can enjoy the experience while staying safe and comfortable. Every trip may require adjustments, but the memories and experiences are well worth it.
